My Mayo Clinic Jacksonville nephrologists Dr. Ivan E. Porter II and Dr. Christopher L. Trautman and my care team of physician assistants, nurses, and patient care technicians deserve much of the credit for the healthy lifestyle changes I’ve made since dialysis treatment became my norm.
The “superstar” of my care team has to be Sarah Canale, RD the nutritionist who closely monitors my bimonthly dialysis bloodwork lab results and who provides me with advice about nutrition and eating. Her recognition and encouragement when my lab work is positive is a huge motivator towards my self-care regimen.
A diagnosis of kidney failure and the need for dialysis can be overwhelming, but with the right lifestyle changes and self-care practices, you can continue to live a fulfilling and vibrant life. Whether you’re managing dialysis long-term or preparing for a kidney transplant, taking control of your health is essential. For Black Americans—who are disproportionately affected by kidney disease—proactive self-care can make all the difference in longevity and well-being. Let’s explore the best strategies for staying as healthy and happy as possible on this journey.
- Nutrition: Your Foundation for Health
Dialysis patients have unique dietary needs. The right nutrition helps manage fluid retention, blood pressure, and overall kidney function. Here’s what to focus on:
- Monitor Your Potassium, Phosphorus, and Sodium Intake: Too many of these minerals can cause complications. Stick to kidney-friendly foods like berries, cabbage, apples, and bell peppers while limiting processed foods, dairy, and certain nuts.
- Control Protein Intake: While dialysis increases protein needs, balance is key. Lean meats, fish, and plant-based proteins (in moderation) are good choices.
- Stay Hydrated but Follow Fluid Limits: Excess fluid can strain the heart and cause swelling. Follow your care team’s recommendations on daily fluid intake.
- Movement & Exercise: Staying Strong
Regular physical activity helps combat fatigue, strengthens muscles, and improves mood. Even light movement can make a difference:
- Low-Impact Activities: Walking, chair exercises, and yoga can keep you active without overexertion.
- Strength Training: Using light weights or resistance bands helps maintain muscle mass, which is crucial for overall strength.
- Stretching & Flexibility: Gentle stretching supports circulation and reduces muscle stiffness.
- Emotional Wellbeing & Mindfulness: Mental Strength Matters
Living with kidney disease comes with emotional challenges, but mindfulness and emotional self-care can provide resilience and joy.
- Meditation & Deep Breathing: These techniques help manage stress and anxiety, improving overall well-being.
- Seek Support: Whether through family, friends, or a dialysis support group, having a strong network is invaluable.
- Journaling & Gratitude Practice: Writing down thoughts and focusing on daily positives can improve your mental outlook.
- Preparing for a Kidney Transplant (If Eligible)
For those who qualify, a kidney transplant offers a new lease on life. Here’s how to prepare:
- Stay on Top of Your Health: Regular check-ups and following dietary and medication guidelines can keep you in the best condition for transplant eligibility.
- Build a Support System: The journey to transplantation can be complex. Having loved ones and medical professionals by your side will help navigate the process.
- Learn About the Process: Understanding the transplant evaluation, waiting list, and recovery can ease anxiety and prepare you for success.
- Thriving Without a Transplant
If transplantation isn’t an option, you can still live a long, fulfilling life on dialysis by prioritizing self-care:
- Stay Engaged in Life: Continue hobbies, connect with others, and set goals to maintain a sense of purpose.
- Manage Your Medications: Take all prescribed medications as directed to control symptoms and prevent complications.
- Advocate for Yourself: Work closely with your healthcare team to tailor a dialysis plan that meets your needs.
Key Takeaway:
Dialysis is a life-saving treatment, but how you care for yourself—physically, emotionally, and mentally—can transform your quality of life. For Black Americans facing kidney disease, prioritizing nutrition, exercise, and emotional well-being is essential for thriving. Whether you’re preparing for a transplant or embracing life on dialysis, self-care is your greatest tool for health and happiness. Staying proactive, seeking support, and living with intention—your well-being is worth it!
Trusted Resources
National Kidney Foundation: 8 Self-Care Ideas for People With Kidney Disease https://www.kidney.org/news-stories/8-self-care-ideas-people-kidney-disease
Empowered Kidney Care: What is self-care in-center dialysis https://empoweredkidneycare.org/blog/what-is-self-care-in-center-dialysis/
Fresenius Kidney Care: Focusing On Your Emotional Health On Dialysis https://www.freseniuskidneycare.com/thriving-on-dialysis/personal-life
DaVita Kidney Care: Understanding Your Labwork https://www.davita.com/education/kidney-disease/symptoms/understanding-your-lab-work
